PWSS (SA) would like to encourage all who are involved in the life of somebody with Prader-Willi syndrome to join the database of Rare Diseases South Africa. ( Your information will help RDSA to get a better idea of the number of persons with Rare Diseases in South Africa. As a joint initiative, between Rare Diseases SA and the Prader-Willi Syndrome support group, we are confident that our parents and children will continue to get the very best support and care. It will also help to put parents of newly diagnosed children in touch with others in their area. To register should only take about 10 minutes and please complete the form to the best of your ability. Thank you.