Links | Prader-Willi Syndrome Support (South Africa)

For regular updates and news please follow our Facebook page

We are a small support group operating under the umbrella of the Rare Disease Association of SA allowing us the benefits of their association as well.
http://www.rarediseases.co.za/
https://www.facebook.com/rarediseasesSA/

Information on the Prader-Willi syndrome is available in different languages on the website of IPWSO, as well as LINKS to several other international associations.

International Prader-Willi Syndrome Organisation (IPWSO)

Other international Prader-Willi Syndrome Associations

United States of America: (Information also in Spanish)
Prader-Willi Syndrome Association (USA)

United Kingdom:
Prader-Willi Syndrome Association (UK)

Canada:
Foundation for Prader-Willi Research

Global Prader-Willi Syndrome Registry

The purpose of the registry is to develop a comprehensive database of individuals with PWS to better understand the full spectrum of PWS characteristics, all people with PWS or their guardians are encouraged to complete the registry.

Australia:
Prader-Willi Syndrome Association of Australia

Facebook-based International chat group
Prader Willi Syndrome Open Forum

For useful TIPS go to:

Latham Centers

The Children's Institute of Pittsburgh

Genetic Counselling services

University of the Witwatersrand, Johannesburg
Medical - Genetic Counselling Services

The National Health Laboratory Service (NHLS) - the largest diagnostic pathology service in SA

University of Cape Town
Clinical Genetics & Genetic Counselling

South African Government Services

The South African Social Security Agency (SASSA), a Social Development entity, is responsible for the administration and management of social grants.

Other