Date
An early childhood diagnosis of Prader-Willi syndrome (PWS) usually provides parents with the opportunity to learn strategies to manage potentially difficult behaviour and obesity. Despite variable intellectual and physical abilities, it must be remembered that a cognitive disability, hunger and reduced satiety remain with the person with PWS throughout their lives. The ability to make appropriate independent decisions regarding energy intake and choices of life rarely eventuates, even as the child with PWS becomes an adult. It will always remain the responsibility of their parent or carer to make healthy choices and maintain firm boundaries around food, money, exercise and lifestyle.