"JOIN THE FIRST APP OF ITS KIND!"
Join IPWSO's huge family around the world, make new friends and get the very best information for your child and your family. Prader-Willi World will give you information from diagnosis to support, from birth to old age.
Check out the Prader-Willi-World web page: http://www.prader-willi-world.com/ and sign up.
YOU ARE INVITED
You are invited to be part of a Global Prader-Willi Syndrome Registry (www.pwsregistry.org).
The Foundation for Prader-Willi Research has taken another tremendous leap forward. The Registry allows the secure collection of a wide range of patient-/caregiver-reported information about the clinical and behavioural characteristics of PWS, which will inform our understanding of PWS and facilitate new research and development efforts. The ultimate usefulness of the Registry is directly dependent on the community’s participation.